ARBD Research

National ARBD service mapping and care provision exercise

In collaboration with the Addictions Research Group at the University of South Wales, the Alcohol Care Team at Sandwell and West-Birmingham NHS Trust are performing a national ARBD service mapping and care provision exercise. We aim to improve our understanding of the current levels of care provided for those living with ARBD, but also to facilitate relationships between healthcare professionals and raise awareness of ARBD, more generally. To help with this work, please complete the Microsoft forms survey via the following link: https://forms.office.com/e/SDQuSW1A3W  or scan the QR code below.

This survey will request information about the service you work in and its current status surrounding assessment, diagnosis and management of ARBD.

For more information about the survey or the Addictions Research Group at the University of South Wales please get in contact via https://health.research.southwales.ac.uk/about-us/addictions-research/ or https://twitter.com/USW_Addictions.

To learn more about a tiered ARBD training package for healthcare professionals developed by the Addictions Research Group at the University of South Wales, please click on the following link: https://www.southwales.ac.uk/business-services/professional-development/short-courses/alcohol-related-brain-damage-arbd/

Invitation to participate in an ARBD study

Focusing on the identification of frontal lobe damage and the dysexecutive syndrome.

Introduction:

When an individual with possible frontal lobe damage struggles to perform everyday life-tasks (e.g., cooking or managing finances) but appears unimpaired by performing well in interviews (during e.g., mental capacity assessments) and when completing traditional screening/assessment tools, this is known as the “frontal lobe paradox” or the “knowing-doing dissociation”.

This study will investigate service providers experiences of the “frontal lobe paradox” when working with individuals who have a diagnosis of, or are suspected of having Alcohol-Related Brain Damage.

Who can participate in this research?

Anyone who have professional experience of working with individuals who have a diagnosis, or suspected diagnosis, of ARBD. It would also be beneficial to have some knowledge or experience regarding the screening/assessment of ARBD or acquired brain injuries, but this is not a requirement.

What does participation involve?

First, you would take part in an online-interview (taking approx. 1 hour) where you would be asked questions focused on your work-role and about your experiences of the “frontal lobe paradox”. Later, you would be asked to complete a few online survey-rounds (max. 3, each taking less than 30 minutes) to state how much you agree with anonymised statements gathered from all participant interviews. The aim is to find out the level of the group-agreement regarding these statements. You would be able to complete each study-part at a time that suits you best.



Please contact
elin.thorkildsen@southwales.ac.uk if you are interested in participating and want more information.

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